Culion Foundation, Inc. was one of the NGO participants in the Regional Cluster Consultative Meeting on Strengthening Participation of People affected by Leprosy in Leprosy Services (SPP). The consultative meeting was held in two venues: Bayview Hotel for Metro Manila Cluster on April 19, 2016 and Diamond Suites for Cebu Province Cluster on April 22, 2016. The objectives of the consultative meeting were to determine the status of leprosy and the National Leprosy Control Program (NLCP); to determine the current involvement or participation of the persons affected by leprosy in leprosy services; to review and identify means and opportunities to promote and accelerate participation; and to enumerate processes and identify methodology for Coalition of Leprosy Advocates of the Philippines (CLAP) affiliated people's organizations in Metro Manila and Cebu together with NLCP and partners in undertaking SPP and developing pilot protocol for SPP implementation. The discussion consisted of improvement of access to quality leprosy services, improvement of case holding and cure, improvement of community education about leprosy as a curable disease, prevention of disability and rehabilitation, advocacy and political support, and research.
The regional consultative meeting in Metro Manila was participated by CFI's Executive Director, Program Manager, and Resource Mobilization Officer. The Executive Director facilitated the workshop on operationalization of SPP in Metro Manila. Areas of concern are stigma, equity, social justice and human rights, gender, quality of life, organizational strengthening, and management of leprosy services. The Program Manager presented the findings and recommendations. For Cebu Province Cluster, the event was participated again by CFI's Executive Director and Program Manager.
At the end of the two regional consultative meetings, the following outcomes were achieved: the findings and recommendations of the National Consultative Meeting were disseminated and the results of the survey were presented, the status of the NLCP in Metro Manila and Cebu was identified, and the factors that favor or limit participation of persons affected by leprosy were identified. The processes and methodologies on how CLAP can undertake SPP in Metro Manila and Cebu were listed. At the same time, SPP pilot protocol was developed by the SPP Pilot Working Committee.
Written and posted by: Ian Christopher Rocha (27 May 2016)